Chapter 13 – Anniversary Time

Reflections on Acceptance and Possible Outcomes

What a winter it has been, as the years roll by since my life-changing diagnosis in 2017—a moment that, like many others before me, marked a profound shift in my life after receiving the difficult news of cancer.

Current state of health, as of October 2024, is pretty good! I’m just back from the latest 4 monthly clinic in Dunedin. The clinical trial continues 🙂

Time Line of This Chapter:

April – October 2024

  • The Wisdom of Acceptance.
  • A taste of death by a thousand snow flakes.
  • Working in the mountains again
  • A classic read on spirituality
  • What Nemo taught me
  • Book recommendation on Zen
  • ACT the ongoing journey
  • Last Words – For Now

In 2017, while sitting in my truck at the Snow Farm car park, I took a deep breath and called my local medical center for an appointment with my long-time friend and GP, Andrew. I delayed mentioning the lump in my groin until the last of the three concerns I wanted to discuss.

Andrew didn’t sugarcoat it—the news wasn’t good, and I appreciated his directness, knowing me well enough to cut to the chase. That winter became the season of change and acceptance, marking my first decision on this journey.

Looking back, I realize that choosing acceptance was the easiest decision I could make at that moment. Taking action has always been empowering for me, but I understand it’s a decision many struggle with. Andrew agreed, noting that his patients who embraced acceptance rather than fighting or battling the illness tended to fare better. Another point he made stuck with me: opting for treatment through our New Zealand health system statistically gives patients the best chance of regaining their health.

The winters flew by. I continued to enjoy many cross-country ski tours at the Snow Farm, even during my treatment.

I met fellow skiers like a woman with advanced breast cancer, diagnosed around the same time as me (sadly she has since passed on), and Graeme, who was in remission from prostate cancer. Graeme was there because we had met years earlier at Aspiring Hut, and I had introduced him to cross-country skiing (nearby Wanaka) as a way to learn about the snowpack for mountaineering and tramping.

Up the valley from Aspiring Hut is French Ridge Hut, accessible by a long, steep, and arduous climb from the valley floor into the alpine zone. It was on that climb, many years before, that I first encountered the values inherent in acceptance. But at the time, I didn’t feel like I had much choice.

French Ridge track starts just where the light on the gravel gives way to shade, and ascends to the hut at the top end of the grass in the light. This photo is taken from Shovel Flat, Mt Aspiring National Park.

The climb to the hut takes two to three hours from the valley, with several false summits—humps on the ridge that trick you into thinking you’re almost there, only to reveal yet another ascent. I knew this from previous visits, but on that occasion, around 2004, it was particularly humid. Three-quarters of the way to the bush line, I realized I had heatstroke or heat exhaustion.

Mistake number one was continuing upward. I rationalized that I could rest at the tree line, rehydrate, eat, layer up, and get my headlamp ready for the next very exposed section. As dusk approached (mistake number two), I set off again at a slow pace. An hour later, the wind picked up, and to my horror, it began snowing horizontally. My headlamp was nearly useless in the blowing snow, and I realized I might not find the hut, with no shelter on the ridge.

Over the years, I’d had a few close calls, but they usually passed in seconds. This time, the situation stretched on, and so did my thoughts. I recalled the mountain wisdom: mistake number three often leads to a fatal outcome (the trick in all this is to know when you’ve made #1 and #2!). If that was my fate, it would be death by hypothermia/exposure, alone in the dark. However having had a couple of near misses as a young man I do know, you don’t know it’s onset, and dying I think would be peaceful along with a confused mind and uncoordinated body (the trick in this one is recognising the conditions of wind/rain that can bring on loss of core body heat, and layering up/eating/getting out of the wind, at that point).

Acceptance wasn’t something I chose that evening of folly—it just happened. I slowed my pace even further to conserve energy while generating enough body heat to survive. Hump after hump passed, and mentally, I entered a calm, detached state. I never thought it at the time, but if there is a third eye (intuitive seeing?) it was engaged also. I’d experienced this before in relation to route finding in the dark in the mountains, more than once. It’s quite the tool to have in the toolbox!

All this, I much more recently realised, is the power of acceptance—it relaxed me and allowed me to keep going. In the zone, where 110% concentration works in conjunction with a slowing down of time. A wonderful place of commitment and pure magic. It’s also worth noting that the breath played a huge role in the outcome. I’d gone uphill on enough mountains to know that doing it right gets us there with more energy to spare on arrival. What I’ve learnt since through ACT therapy is the calming effect and that when anxiety is put aside we have a much more holistic view of what’s going on around us and within. Then (often later for the refined version) the story we create about the event is less fragmented, and because of this more accurate (and as I recall and write this one I’m inclined to think it is pretty accurate).

Finally, through the wind and snow, I spotted something unnatural: the corner of the hut’s toilet roof. At that moment, I came back to myself, coming back to, “of this world”! But exhaustion hit hard too. I was only 50 meters from the hut, but I sat down against a rock, not to sleep but to rest. As I marveled at the snow-filled night, I reflected on how my mindset had shifted out of survival mode instantly. It was a profound experience., especially the speed of change (I refer here to buying into, or more like, being forced into acceptance at the bush line as dusk was gathering, as well as at the moment I knew I was safe).

Imagine if…

The brain’s ability to forge new neural pathways can happen incredibly quickly, almost instantly. But I also note it can take a long time and some hard work—maybe one’s previous life experiences inadvertently prepare us/the brain, as in the French Ridge folly!? Or the situation dictates it.

So I wonder: if we can so swiftly shift our mindset, how might that impact a disease like cancer, or affect the treatments? Could opening those mental doors somehow influence the healing process? I do know that for sure when I walked into the oncology day unit for my first download, my mind was as open as I could make it. I had accepted stepping into the unknown. Looking back I think I went a few steps further! And that may have changed the chemistry in ways that made a total response to the first (traditional chemo) treatment possible. We just don’t know as I can’t go back and make different decisions. It’s an unknowable scenario!

But then what role, exactly, did acceptance play in my rapid remission? I like the word “stumbled” because, looking back, I think I repeated the French Ridge experience in my own cancer story—it just took much longer to unfold. Does moving beyond mere acceptance lead to healing opportunities we may have previously overlooked, or that science has yet to discover? Perhaps then the best approach is to explore each door we’re offered, while also embracing the incredible support, with accompanying success rate provided by our health system.

French Ridge hut. As viewed from the toilet!

I stayed an extra night at the hut to recover. Rain had made the bush track slippery and risky, but more importantly, heat exhaustion damage takes time to heal.

French Ridge hut (from French Ridge) is out of sight top left. Gloomy Gorge to the right. A place very difficult of access!

By the time of my cancer diagnosis in 2017, I had mostly forgotten that experience, but subconsciously, it was still with me. Now I see that some traumatic experiences can be valuable, even transformative.

Fast-forward to December 2023, when a fortuitous opportunity arose: The Snow Farm needed a hut caretaker, so I applied and got the part-time, year-round job. As autumn progressed, I took on solo work, maintaining the four huts and helping with the final construction of a new base building before the ski season.

This led to the wonderful experience of working with about 24 seasonal staff from all over the world, most in their 30s, and 60 percent of them women.

Among them was an oncology nurse, and we had some deeply insightful conversations about acceptance. I learned how common it is for people to deny acceptance, right up to the end, turning their experience into a battle that consumes energy and resources that could be better used elsewhere.

This experience reminded me of a book I had read years ago, which touched on how sages approached death—not through suicide but through acceptance. A knowingness even of when to leave (their body):

I’ve just finished reading this book for the 2nd time. It’s very fascinating and thought provoking. The stories/anecdotes are so “out there”, I can’t imagine anyone could make them up! Great insights also into what came before the world’s great religions.

Living with the Himalayan Masters

“One of the great spiritual classics of all time. An insider’s view of hidden adepts who live outside time and space as we know it, yogis and yoginis who can’t possibly exist–but do!”

-Linda Johnsen, author of The Living Goddess: Reclaiming the Tradition of the Mother of the Universe

The Himalayan Institute

ISBN: 978-0-89389-156-5

Another unexpected and more recent valuable lesson:

What Nemo taught me

A cat I’d looked after and got very close to had to leave. Health issues. A very sad and poignant saying goodbye – his last few cuddles were on my lap, prior to his last visit to the vet. Middle aged and affected by a previous encounter with a car Nemo taught me the following:

  • Set boundaries (patting his damaged rear end would elicit an attempt at biting – don’t go there!).
  • The value of play (see photo). His reaction times were incredible.
  • Knowing when to do nothing (he’d watch a bird close by but never attempt to catch it. He knew he could and he was so fast in play he could have easily done so, but never did).
  • The importance of being social (any human visitors, he’d be there wanting to be involved. Not looking for pats or tickles, but simply to be part of it). If ignored he’d get quite offended and wander off.
  • Nemo never had a sense of entitlement! Unlike many cats I’ve known.
  • That mixing with school children walking to school was good for his health.
  • Non engagement (again do nothing). (Once by his home door/pathway he was in an exposed position and a dog went by, oblivious. Nemo simply ducked behind a potted plant and quietly waited until the threat passed)
  • He knew how to give love (unlike many cats that demand same). He was uncanny in this respect. Near the end he’d sometimes retreat to a walk-in wardrobe (to die it was realised), but would always return to the love he knew he was part of. And that he deserved.
  • Before I met him he knew when to leave a less than suitable relationship (he was with a house full of noisy children and two dogs – his owner when found was really glad he’d found a new place to live).
  • Being curious (helps off-set anxiety I’ve found – he was always so interested in many things – it seems he drew things to himself deliberately)

RIP Nemo (aka Puss)

I saw this title in the University Bookshop in Dunedin and I purchased same. Having known Nemo was the motivation for purchasing! Very artistic Japanese art inspired graphics too, and a lovely read. A book it’s nice to own!

The Cat Who Taught Zen

From author of Big Panda and Tiny Dragon, a new adventure featuring a wise cat, a curious kitten, and the Zen wisdom they uncover on their journey together. This is the tale of a cat wise in the ways of zen who hears of a solitary ancient pine, deep in a maple forest, under which infinite wisdom may be found.

Whitcoulls

ISBN 9780241640159

Acceptance and Commitment Therapy (ACT) — The Ongoing Journey

Since finishing my formal ACT sessions in June 2024, I had intended to review my notes, but life had other plans. Instead of revisiting the past, I found myself diving deeper into the present. It’s as if the universe sensed I was ready for more—and not in the way I expected. I became busier, but not in a burdensome sense. Instead, life started unfolding in fascinating ways, with serendipity and coincidence appearing more frequently. This added richness to my daily experiences.

I always knew that questioning my beliefs, biases, and values would lead to growth—usually for the better, though discernment is crucial. What I hadn’t anticipated was how others would change their approach to me. In subtle but significant ways, people began presenting themselves with a different energy, and their shifts triggered changes in me too. These moments affected how I reacted, sometimes leaving me unsure where to focus my attention, even in terms of writing for this blog.

As seasons change—especially in winter, with its new dampness and corresponding snowpack changes or even shifting perspectives on climate change—so too does my inner landscape. I’ve encountered more of what could be called “suffering” in the world around me, though I acknowledge I can never fully understand another’s pain. Meditation, in a form that resonates with me, has become my default mode. It’s been fascinating to witness the uptick in my capacity for empathy and compassion, not to mention how much easier it has become to stay grounded.

I now find myself stepping back more often, observing situations without getting drawn into the emotional whirlwind. This shift allows me to maintain a broader, healthier perspective. I don’t feel the need to react to everything. Sometimes, all that’s required is to listen deeply to another person and ask the occasional yet simple, clarifying question. This helps me figure out where best to invest my energy to get the most meaningful results, both for myself and those around me.

Last Words (for Now)

  • The change in energy from others has started to influence my relationships in profound ways. I’m sensing more authentic connections, which feels refreshing.
  • I plan to expand on my observations of serendipity, as this seems key to exploring how ACT has heightened my awareness of life’s interconnectedness. To do so, I realize I’ll need to become more open—starting with myself, to myself! I’ll address openness with others as the process unfolds. Not long ago, I believed I had always shared enough of myself with others, but I now see that I was mistaken. I’ve been closed off, to my detriment and theirs.
  • The ongoing question is how this personal growth aligns with my larger life goals and values. How do these shifts support my overall vision? Note to self: values is the keyword!
Snow Farm NZ – Musterers Hut

If you landed on a single post instead of the Home Page then click here please to go to Home >>

BTW current state of health, as of October 2024, is pretty good! I’m just back from the latest 4 monthly clinic in Dunedin. The clinical trial continues 🙂

The next post/chapter will be titled something like, hmm, well I’m not sure yet!

If you would like an email notification for new posts coming up (at least a doz. planned), then please leave your details here

The content presented on the site is in no way intended as medical advice. Or as a substitute for medical treatment. Guidance from your doctor or other health care professional should always be sought. Be involved with them on all levels.

Chapter 1 – The lead up to Diagnosis

Matukituki Valley, Mt Aspiring National Park. The authors home for a few years.

In the Beginning:

In the early weeks of 2017, it felt like I had been diagnosed with a mystery illness. It took some detective work to figure out the exact flavor of the disease – it was a rare form of mantle-cell lymphoma. It was like a game of Clue, but with a lot more science involved!

I was stuck between a rock and a hard place for a while.

Time Line of This Chapter:

  • The austral winter of 2017 – July through to Oct.
  • Some background leading up to a diagnosis
  • Many tests before the diagnosis
  • How did I feel
  • Technical notes
  • Decision making imminent

Mt Bevan, West Matukituki Valley, Mt Aspiring National Park, New Zealand

My story started with a wobbly knee. I was working for the third time for New Zealand’s Department of Conservation for a six-month period, spanning the summer of 2016-17. The location was the West Branch of the Matukituki Valley in Mount Aspiring National Park, the crown jewel of National Parks and a dream destination for any mountain lover. It was like a fairytale, but with a lot more hiking involved!

Towards the end of my last contract, I developed a wobbly knee, which was a bit alarming in New Zealand’s rugged Southern Alps. For my last walk out for the season, I radioed my workmates to let them know that a modest 4WD rescue might be necessary. However, I never did fall over and the mystery of what was causing it wasn’t revealed for a few more months. It was like a suspenseful movie, but with a lot of solitude involved!

The "Meat" tree by Aspiring Hut, West Matukituki Valley, Mt Aspiring National Park, New Zealand

Plodding alone down the valley in the autumn mist on my last walk out, I came across the “Meat” tree by Aspiring Hut. The tree symbolized the end of a chapter in my life, and the start of a new one filled with health and happiness.

◀ So called because old time deer cullers used to hang their tucker in it “to season”

So-called “front country” tramping had taken off (the new terminology referring to the easy walks in our back country). And the question arose in my mind, “Do I ever want to do this, now overwhelming job, again?”

Looking down West Matukituki Valley, Mt Aspiring National Park, New Zealand. From the Liverpool Hut track

Every day I would interact with lovely people, for sure, but front country types tend to be high maintenance (7am until 10pm) – they’re in an environment new to them and have lots of questions relating to the ticking off of to-do lists (inspired by the internet). These questions usually pertained to weather timing and times to get to other huts.

Discovering a lump in my groin by winter was a bit of a shock. I went to my doctor, who is an old friend and knows me well. The first thing I brought up was my wobbly knee, the second was the lump. After that, the knee got forgotten!

My doctor and I are old friends, so knowing me well he told me the serious truth of the matter, right up front. A blessing – that was what I needed! But of course detail was missing.

I mentioned that after I finished my seasonal job with the Department of Conservation, I had taken several weeks to recover. My doctor replied, “It’s good that you did!” or something similar. Looking back a few months later, I realized this might have been an indicator that the disease was not as aggressive as first thought, but on the other hand, it could be a risky assumption to make.

How did I feel:

  • Felt vulnerable and scared
    • Solution: make an effort to put these aside and deal with clarity, with no wasted energy. Be selective about which emotions to entertain and let ingrained survival skills come to the fore.
  • Felt shocked and indignant – cancer happens to others, not me. Realized sugar habit and emotional health may have played a role.
  • Felt anger briefly, but realized it was useless for personality type.
  • Experienced sudden tears while driving, wanting to be there for my son.
  • Initially held a “victim” persona (“poor me”) which was examined later.
  • Felt desperation and turned to yoga and dietary changes, including reducing sugar and drinking lemon water each morning for hydration.
The old Cadbury Chocolate factory currently being demolished to make way for the new Dunedin hospital

For the moment, the public health system at Dunedin Hospital was running full steam ahead for me. I had a quick surgical procedure to remove my tumor, which and it had been scheduled to happen very quickly.

The old Cadbury Chocolate factory currently being demolished to make way for the new Dunedin hospital.

One Friday, I received a call from a surgeon while I was driving. I pulled over to take the call and he told me that it was urgent to remove the tumor as soon as possible and he had a space available on the Monday. The surgeon also mentioned that his last name was similar to a popular character in a children’s book series, but he assured me that he was much nicer looking and not related.

It turned out that one of my best friends, who was an anesthetist, had worked with my surgeon before and said that he was very good. And indeed, the surgeon was very reassuring and professional prior to the procedure. I was soon taken into the operating room where there were about eight people waiting for me. They started the procedure and I was out like a light before I’d even had a chance to look around.

When I woke up, I was greeted with a welcome tea and sandwiches. I was pleased to find that there were no after effects like queasiness. And I commented on how far the technology has come.

Technical Stuff (Keeping in mind I’m not a doctor! And that at the time I was not only feeling poorly, but the recipient of bad news. Both inhibited my ability to keep track of detail. And frankly it would have served no purpose if I had. Nor would I have understood the detail.)

Before the surgery, I underwent a fine needle biopsy (the sample was too small) and a bone marrow biopsy, which revealed evidence of the disease. I also had some blood work done (which was okay) and a CT scan to help define locations and likely reveal other critical information. Additionally, I had a manual hands-on examination of my immune system circulatory areas and associated places, such as my neck, chest, armpits, groin, and stomach, to look for lumps. Various lumps of various sizes were found.

Each test was reviewed and signed off by the appropriate specialist. I later saw the resulting email that contained the collated information and it was very long and technical, which was reassuring.

🔎 Within days of the surgery, the type of disease I had was identified. The next step was outlining the treatment plan options. I also noticed that my knee was feeling better after the surgery and realized that the tumor must have been pressing on a nerve.

A summation and decisions I thought I had to make at the time:

  • Who to tell about my diagnosis, if anyone, and when?
  • Whether to approach my treatment as a battle or not
  • What changes I need to make in order to survive and become healthy
  • How to best prepare for the future while staying present in the moment
  • Who would be willing and able to support me
  • What I should do first to address my diagnosis and treatment plan

If you landed on a single post instead of the Home Page then click here please to go to Home >>

The next post/chapter will be titled something like, “Skiing with humor with those who are now dead”

If you would like an email notification for new posts coming up (at least a doz. planned), then please leave your details here

The content presented on the site is in no way intended as medical advice. Or as a substitute for medical treatment. Guidance from your doctor or other health care professional should always be sought. Be involved with them on all levels.

All photos on this site are my own. With the very odd exception, and attribution is acknowledged on them where possible. To see/ purchase photos from my wanderings, they’re at PicFair >>



Translate »